LINK NAAR EEN VAN ONZE 41 LIDSTATEN VOOR LOKALE ONDERSTEUNING, ADVIES EN NIEUWS

bekijk kaartSluit
  • Finland
  • Norway
  • Sweden
  • Estonia
  • Russian Federation
  • Latvia
  • Denmark
  • Lithuania
  • United Kingdom
  • Netherlands
  • Ireland
  • Poland
  • Germany
  • Belgium
  • Czech Republic
  • Ukraine
  • Slovakia
  • Luxembourg
  • Moldova, Republic of
  • Austria
  • France
  • Switzerland
  • Romania
  • Slovenia
  • Croatia
  • Serbia
  • Bosnia & Herzegovina
  • Bulgaria
  • Italy
  • Macedonia, the Former Yugoslav Republic of
  • Spain
  • Greece
  • Israel

Nieuws En Evenementen

  • Pascal Niemeyer resigns as IGA Chairman and Director

    13 February 2019

    Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.

    The IGA regrets but will respect his decision.

    We are very thankful for Pascal´s engagement for the …

    read more »

  • Australia & New Zealand to join the IGA

    12 February 2019

    We are pleased to announce that the Gaucher Association of Australia & New Zealand have now joined the IGA, taking our membership up to 50 member associations from 51 countries worldwide.

  • Looking for Volunteers

    22 January 2019

    Patient/Parent focus group for Global Patient Registry for nGD – are you interested in taking part?

    Last week the IGA announced the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in …

    read more »

  • January 2019 newsletter

    22 January 2019

    Read our latest newsletter here

  • Global Patient Registry for nGD

    14 January 2019

    The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …

    read more »

  • December newsletter

    18 December 2018

    Read our latest newsletter here

  • Mongolia to join the IGA

    10 December 2018

    We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …

    read more »

  • November newsletter

    30 November 2018

    Read the IGA's latest newsletter here

  • Minutes from the EGA's Biennial Members Meeting

    21 November 2018

    Please click here to read the minutes from the European Gaucher Alliance´s Biennial General Meeting which took place on Monday 16 & Tuesday 17 October 2018 at the Tallink Hotel Riga

  • October newsletter

    1 November 2018

    Read all about the IGA's biennial meeting that took place in Riga earlier this month here