Nieuws En Evenementen

Online events - Autumn programme

6 August 2020

We are excited to share with you our schedule of virtual meetings taking place throughout the Autumn which you can easily book on to now... 

Starting in September, we are offering a series of online educational …

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AAV Gene Therapy for neuronopathic Gaucher disease

5 August 2020

Taking place on Monday 5th Ocober from 3-4:30pm (GMT), this is the second in a series of educational webinars for our members on the latest developments in gene therapy will focus on AAV-based gene therapy and Prevail Therapeutic's approach …

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IGD2020: Home Therapy webinar

5 August 2020

In view of the challenges many Gaucher patients have faced during the coronavirus pandemic, the focus of this year's IGD campaign is home therapy.

The second of our educational webinars on home therapy, this one will take place on 1 …

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Ex vivo Gene Therapy for GD1

5 August 2020

The first of a series of educational webinars on the latest developments in gene therapy for Gaucher treatment, focusing on AVROBIO's lentiviral gene therapy, an ex vivo gene therapy approach for Type 1 Gaucher disease, will take place on …

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EWGGD GD1 Guidelines

5 August 2020

IGA in collaboration with EWGGD to form a working group to develop International clinical management guidelines for type I Gaucher disease

On Monday 14th September at 3pm (GMT) the EWGGD/IGA will host a kick-off event to develop International …

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Gaucher and Parkinson's disease: the early signs and risks to carriers

31 July 2020

We will have three panelists: prof Ari Zimran, prof Per Svenningsson and Dr Marco Baptista.

Researchers have linked Gaucher disease to a slightly increased risk of having Parkinson's disease later in life. This is also true for carriers, …

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Educational webinars

31 July 2020

We will soon be sharing our schedule of virtual meetings taking place throughout the Autumn which you will be able to book on to... 

We are very excited to be offering a series of online educational webinars for our …

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Home therapy with enzyme replacement therapy for Gaucher disease: a short statement from the European Working Group on Gaucher Disease (EWGGD)

30 July 2020

Statement on Home Therapy

Home therapy with enzyme replacement therapy for Gaucher disease: a short statement from the European Working Group on Gaucher Disease (EWGGD)

Since the availability of enzyme replacement therapy for Gaucher disease …

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IGD Home Therapy Photo Competition

22 July 2020

#IGD2020 will focus on home therapy and our campaign will be totally online with no printed materials or merchandise.

We will be producing an online poster which can be shared on social media to promote the day and to raise awareness and would …

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International Gaucher Day 2020

14 July 2020

Taking into consideration the challenges currently being faced by our members due to the current Covid-19 pandemic we have decided to focus this years' campaign on home therapy.  Earlier this year we held a webinar and have been working …

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