De EGA is een pan-Europese umbrella groep die de belangen vertegenwoordigt van Gaucherpatienten en Gaucherpatientgroepen in Europa en elders in de wereld. Lokale patientgroepen kunnen in afzondering niet effectief werken. De EGA bied een goede vertegenwoo
Nederlands ▼ login ▼Pascal Niemeyer, Chairman of the IGA since 2016, has decided for personal reasons to resign both, as chairman and as director of the IGA.
The IGA regrets but will respect his decision.
We are very thankful for Pascal´s engagement for the …
We are pleased to announce that the Gaucher Association of Australia & New Zealand have now joined the IGA, taking our membership up to 50 member associations from 51 countries worldwide.
Patient/Parent focus group for Global Patient Registry for nGD – are you interested in taking part?
Last week the IGA announced the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in …
Read our latest newsletter here
The International Gaucher Alliance (IGA) are today pleased to announce the launch of Phase 1 of the development of a Global Patient Registry for neuronopathic Gaucher Disease (nGD) in order to increase disease knowledge and understanding, but also …
Read our latest newsletter here
We are pleased to announce that the ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА "Together in the Fight Against Rare Diseases" (Mongolia) have now joined the IGA, taking our membership up to 49 member associations from 49 …
Read the IGA's latest newsletter here
Please click here to read the minutes from the European Gaucher Alliance´s Biennial General Meeting which took place on Monday 16 & Tuesday 17 October 2018 at the Tallink Hotel Riga
Read all about the IGA's biennial meeting that took place in Riga earlier this month here