De EGA is een pan-Europese umbrella groep die de belangen vertegenwoordigt van Gaucherpatienten en Gaucherpatientgroepen in Europa en elders in de wereld. Lokale patientgroepen kunnen in afzondering niet effectief werken. De EGA bied een goede vertegenwoo
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Evenementen
COVID19 - home treatment webinar
28 April 2020
One of the challenges that the COVID19 situation has brought to Gaucher patients is receiving ERT infusions and at the recent EWGGD webinar recommendations were made to provide home treatment wherever possible.
A Zoom meeting has been set up for …
Biennial Members Meeting
16 April 2020
Notice is hereby given that the Biennial General Meeting of the International Gaucher Alliance will be held online via Zoom on Saturday 23 May 2020 at 7pm (UK time).
Details of the meeting including resolutions and business to transact have been …
2020 Biennial Members Meeting
4 February 2020
The IGA’s biennial members meeting and the 14th EWGGD congress will take place in Leiden, Netherlands from 23rd to 27th May 2020 and the IGA will be inviting one representative from each of its member associations to attend.
(The …
International Gaucher Day 2017
16 May 2017
We are already very busy planning for this year’s International Gaucher Day (IGD) which will take place on 1st October 2017.
This year we want to show how people live everyday life with Gaucher disease, how …
Rare Disease Day 28th February 2017
10 February 2017
UKGA's 7th nGD Family Conference 13-15 November 2015 in Manchester, UK
22 April 2015
Please find below more details about the UK Gauchers Association’s biennial nGD conference commencing on the evening of Friday 13th November until lunch time on 15th November 2015 at The Park Inn Hotel in Manchester, UK.
The conference will …Serbia: The third regional Gaucher patient meeting
9 February 2015
The third regional Gaucher patient meeting will take place in Belgrade (Serbia), 8.-10. 5. 2015.
Gaucher patients and physicians from Slovenia, Croatia, Bosnia and Herzegovina, Serbia, Montenegro, Kosovo and Macedonia are invited. Welcome are also …Launch of the Official Website of the 11th EWGGD Meeting In Haifa, Israel
22 March 2014
Together with the organising committee of the 11th EWGGD Meeting we are delighted to provide you with more information about the next meeting.
This year’s meeting will be held from June 25th to 28th, 2014 at the Dan Carmel Hotel in Haifa, …
10th anniversary of Slovenian Gaucher Association
28 October 2013
The 10th anniversary of Slovenian Gaucher Association will be celebrated on 10th November 2013 in Ljubljana.
More information: irena@eurogaucher.com.Austrian Gaucher Meeting 21/23.09 (Innsbruck)
18 April 2013
The Austrian Gaucher Association Meeting will take place on 20/21 September 2013 in Innsbruck, Austria.
Please contact Roman Pichler for more details: pichler@liwest.at