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De EGA is een pan-Europese umbrella groep die de belangen vertegenwoordigt van Gaucherpatienten en Gaucherpatientgroepen in Europa en elders in de wereld. Lokale patientgroepen kunnen in afzondering niet effectief werken. De EGA bied een goede vertegenwooNederlands ▼ login ▼
Orphazme have just announced their interim report detailing their activities and achievements for the first half of 2019 and we’re thrilled about one of their milestones: they have completed enrolment in their Phase II Gaucher clinical trial …
Read all the latest news from the IGA here
As we continue to grow our global reach to provide a strong voice for Gaucher patients worldwide Patricia Lucki joins our team of regional managers to support the Central America region.
Patricia was born in Argentina and has lived in …
CEO, Tanya Collin-Histed writes; The IGA works closely alongside the pharmaceutical companies that have charitable access programmes to ensure no-one gets left behind.
Earlier this year several Gaucher patients applied for charitable treatment …
We love sharing Good News stories... the collaboration of Takeda and Direct Relief means that a child in Tanzania is now getting treatment for Gaucher disease through their charitable access programme.