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- О ЕАГ
- НОВОСТИ И СОБЫТИЯ
- ПОДДЕРЖКА ЕАГ
We have always pledged to help any Gaucher patient that asks us for help wherever they live in the world, therefore advocating for charitable treatment has always been and will be our priority.
We are so pleased to be able to share with you (with permission) these photos of children from India who are receiving treatment for Gaucher disease through charitable access programmes together with an extract from a statement by Indrasena Reddy, a father from India:
“We are very much grateful for all your precious support and help provided for us to see this day our children alive and living their childhood with other children only because of IGA.
We are also very grateful to this organisation which is providing significant service which no other organisation capable of proving in our own experience, hope this kind help will extended in folds to all who requires your valuable service who ever needed.”
Tanya Collin-Histed (CEO) and Vesna Aleksovska (Chair) provided a joint statement:
“Living with Gaucher disease means different things in different countries in the world. This is why it is important to have the International Gaucher Alliance (IGA). Gathering all patients through their patient organisations under one umbrella gives strength to individual patients across the globe. We want to ensure that no patient is left behind and knows that someone cares, someone is there to listen, provide support and help. This is why IGA is the go-to organisation for Gaucher families all over the world.”