ПЕРЕХОД НА СТРАНИЦУ ОДНОЙ ИЗ 41 СТРАН-ЧЛЕНОВ ДЛЯ ПОЛУЧЕНИЯ МЕСТНЫХ НОВОСТЕЙ, СОВЕТОВ И ПОДДЕРЖКИ

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Новости и события

  • Brazil to join the IGA

    26 June 2019

    We are pleased to announce that the Catarinense Association of Patients, Friends of Gaucher and Other Rare Diseases (Brazil) have now joined the IGA, taking our membership up to 51 member associations from 52 countries …

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  • June newsletter

    25 June 2019

    Our June newsletter is available to download here

  • ORDER YOUR #IGD2019 TATTOOS - MEMBERS ONLY

    5 June 2019

     

    As part of IGD2019 "Rare Stars: Bringing hope, improving lives" we are looking into the possibility of producing the IGD2019 logo as temporary tattoos* which we will send to each of our member patient groups to share with …

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  • NOMINATE YOUR RARE STAR FOR #IGD2019

    4 June 2019

     

    Following the announcement of our 2019 campaign for IGD "Rare Stars: Bringing hope, improving lives" we would like to ask you to nominate your own Rare Star - this should be someone who has made a difference in your life as a …

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