Connect with a Gaucher patient organisation in your country.
Finding other people who understand your experience can make a real difference. IGA member organisations provide support and connection for people and families affected by Gaucher disease in countries around the world. Use the directory below to find an organisation in your country.
| Country | Organisation | Website | Contact |
|---|---|---|---|
| 🇦🇷 Argentina | Alianza Lisosomal Argentina - ALA - Lysosomal Alliance Argentina | ✉ alianzalisosomal@gmail.com | |
| 🇺🇦 Ukraine | All-Ukrainian Gaucher Organization | ✉ melkiymartynenko@gmail.com | |
| 🇨🇴 Colombia | Asociación Colombiana de Pacientes con Enfermedades de Depósito Lisosomal | www.acopel.org.co | ✉ nformacion@acopel.org.co |
| 🇵🇾 Paraguay | Asociación de Pacientes de Gaucher del Paraguay. APAG-PY | ✉ zoryaguilera@gmail.com | |
| 🇪🇸 Spain | ASOCIACIÓN ESPAÑOLA DE ENFERMOS Y FAMILIARES DE LA ENFERMEDAD DE GAUCHER (Spanish Association of Patients and Relatives of Gaucher Disease) | www.aeefegaucher.es/ | ✉ Gaucher98@yahoo.es |
| 🇲🇽 Mexico | Asociación Gaucher de México. A.C. | www.gaucher.com.mx | ✉ manuelcasamayor12@gmail.com |
| 🇬🇹 Guatemala | Asociación Guatemalteca para las Enfermedades Lisosomales ANGE (Guatemala National Association for Lysosomal diseases) | www.angel-lisosomal.org | ✉ info@angel-lisosomal.org |
| 🇪🇸 Spain | Asociación MPS-Lisosomales España Spanish MPS-Lysosomal Association | mpslisosomales.org/ | ✉ Info@mpslisosomales.org |
| 🇵🇪 Peru | Asociación Peruana De Pacientes Con Enfermedades De Depósito Lisosomal/Peruvian Association Of Patients With Lysosomal Storage Diseases | ✉ peruappel@yahoo.com | |
| 🇷🇴 Romania | Asociaţia Gaucher România (Romanian Gaucher Association) | infogaucher.ro/ | ✉ infogaucher.ro@gmail.com |
| 🇧🇷 Brazil | Associação Catarinense de Pacientes,Amigos de Gaucher e Outras Enfermidades Raras | www.acpaggaucher.org.br | ✉ info@acpaggaucher.org |
| 🇲🇿 Mozambique | Associação Moçambiacana de Doenças Raras (AMODORA)/Mozambican Association of Rare Diseases | ✉ Amodora2019@gmail.com | |
| 🇵🇹 Portugal | Associação Portuguesa de Doenças do Lisossoma (Portuguese Association of Lysosome Diseases) | www.aplisosoma.org/ | ✉ franciscocarreiro@carreiro.pt |
| 🇯🇵 Japan | Association of Gaucher Disease Patients in Japan | www.gaucherjapan.com | ✉ gaucherjapan@gmail.com |
| 🇮🇹 Italy | Associazione Italiana Gaucher | www.gaucheritalia.org/ | ✉ info@gaucheritalia.org |
| 🇧🇪 Belgium | BOKS – Belgische Organisatie voor Kinderen en volwassenen met een Stofwisselingsziekte vzw | www.boks.be | ✉ secretariaat@boks.be |
| 🇧🇼 Botswana | Botswana Organisation for Rare Diseases | www.bordis.org | ✉ rareconnectbotswana@gmail.com |
| 🇸🇮 Slovenia | Društvo bolnikov z gaucherjevo boleznijo Slovenije (Slovenian Gaucher Association) | www.gaucher-drustvo.si/novice.htm | ✉ info@gaucher-drustvo.si |
| 🇷🇴 Romania | Fundatia Romana Pentru Bolile Lizozomale | www.boalagaucher.ro/ | ✉ info@boalagaucher.ro |
| 🇮🇪 Ireland | Gaucher Association | ✉ ga@gaucher.org.uk | |
| 🇪🇪 Estonia | Gaucher Association Estonia | ✉ mariliisvaino@gmail.com | |
| 🇦🇺 Australia | Gaucher Association of Australia & New Zealand | www.gaucheranz.com.au | ✉ gaucheranz@outlook.com |
| 🇺🇸 United States | Gaucher Community Alliance | www.gauchercommunity.org/ | ✉ aviva@gauchercommunity.org |
| 🇩🇪 Germany | Gaucher Gesellschaft Deutschland (GGD) e.V. | http://www.ggd-ev.de | ✉ mail@ggd-ev.de |
| 🇳🇴 Norway | Gaucherforeningen Norge | www.gaucherforeningen.no/ | ✉ gaucher.norge@gmail.com |
| 🇬🇧 United Kingdom | Gauchers Association | www.gaucher.org.uk/ | ✉ dan@gaucher.org.uk |
| 🇹🇭 Thailand | Genetics LSD Foundation Thailand | %20www.lsdthailand.com/ | ✉ geneticlsdthailand@gmail.com |
| 🇱🇹 Lithuania | Gose Asociacija | ✉ gose.asociacija@gmail.com | |
| 🇬🇲 The Gambia | Hope Life International (HLI) | www.worldhepatitisalliance.org/member/hope-life-international/ | ✉ admin@hlilife.org |
| 🇭🇷 Croatia | Hrvatska udruga oboljelih od Gaucherove bolesti | www.hrvatska-gaucher-udruga.hr/ | ✉ gaucherhrvatska@gmail.com |
| 🇧🇦 Bosnia & Hercegovina | Humanitarna organizacija “Nada u bolji život” | www.nadauboljizivot.ba | ✉ nadauboljizivot@gmail.com |
| 🇮🇱 Israel | Israeli Gaucher Association | www.gaucher.org.il | |
| 🇵🇰 Pakistan | LSD Society Pakistan | www.%20lsdpk.org/ | ✉ info@lsdpk.org |
| 🇮🇳 India | Lysosomal Storage Disorders Support Society | lsdssindia.org/ | ✉ contactus@lsdssindia.org |
| 🇸🇪 Sweden | Morbus Gaucherföreningen i Sverige | morbusgaucher.se/ | ✉ info@morbusgaucher.se |
| 🇹🇷 Turkey | MPSTURK (Mukopolsakkaridoz ve Benzeri Lizozomal Depo Hastalıkları Derneği) | www.mpsturk.org/ | ✉ mpsturk@gmail.com |
| 🇺🇸 United States | National Gaucher Foundation (NGF) | www.gaucherdisease.org/ | ✉ info@gaucherdisease.org |
| 🇨🇿 Czechia | Občanské sdružení rodičů dětí a dospělých postižených Gaucherovou chorobou | www.sdruzenimeta.cz | ✉ Katerina.uhlikova@seznam.cz |
| 🇦🇹 Austria | ÖGG – Österreichische Gaucher Gesellschaft | www.morbus-gaucher-oegg.at | ✉ info@morbus-gaucher-oegg.at |
| 🇲🇽 Mexico | Proyecto Pide un Deseo México | www.pideundeseo.org | ✉ proyecto.pideundeseo.mexico@gmail.com |
| 🇮🇷 Iran | Rare Diseases Foundation of Iran (RADOIR) | raredisease.ir/ | ✉ info@radoir.org |
| 🇿🇦 South Africa | Rare Diseases South Africa NPC | www.rarediseases.co.za/ | ✉ info@rarediseases.co.za |
| 🇱🇻 Latvia | Reto slimību biedrība “Caladrius” (Rare Disease Society “Caladrius”) | www.draugiem.lv/caladrius | ✉ rsbc@inbox.lv |
| 🇩🇰 Denmark | Sjældne-netværket – Sjældne-netværket er et tilbud til mennesker med sjældne sygdomme og handicap samt til deres pårørende, der ikke har en forening i Danmark at henvende sig til og måske melde sig ind i. Sjældne-netværket administreres af Sjældne Diagnoser. | sjaeldnediagnoser.dk/sjaeldne-netvaerket/ | |
| 🇵🇱 Poland | Stowarzyszenie Rodzin z Chorobą Gauchera (Polish Association of Families of Gaucher Disease Patients) | ✉ blazej.jelonek@gmail.com | |
| 🇫🇮 Finland | Suomen Gaucher Yhdistys | ✉ joparkkinen@gmail.com | |
| 🇨🇦 Canada | The National Gaucher Foundation of Canada | gauchercanada.ca | ✉ info@gauchercanada.ca |
| 🇷🇸 Serbia | Udruženje građana za pomoć u lečenju obolelih od Gošeove bolesti UGOŠ (Association for Help in Treatment of Patients Suffering From Gaucher’s Disease) | www.gose-srbija.rs/ | ✉ gose.srbija@gmail.com |
| 🇧🇦 Bosnia & Hercegovina | Udruženje oboljelih od rijetkih bolesti u Bosni i Hercegovini | www.rijetkebolesti.ba | ✉ kozbih@gmail.com |
| 🇫🇷 France | Vaincre les Maladies Lysosomales | www.vml-asso.org/ | ✉ directeur@vml-asso.org |
| 🇳🇱 Netherlands | Volwassenen, Kinderen en Stofwisselingsziekten (VKS) | www.stofwisselingsziekten.nl/ | ✉ info@stofwisselingsziekten.nl |
| 🇸🇰 Slovakia | ZOGO, Zdruzenie Ojedinelych Genetickych Ochoreni | ✉ zogo@zogo.sk | |
| 🇬🇷 Greece | Πανελλήνιος Σύλλογος Ασθενών & Φίλων Πασχόντων από λυσοσωμικά νοσήματα (Panhellenic Association of Patients and Friends Suffering from Lysosomal Diseases “the Solidarity”) | www.greeklysosomal.gr | ✉ greeklysosomal.assoc@gmail.com |
| 🇲🇰 Republic of North Macedonia | Здружение на граѓани за ретки болести ЖИВОТ СО ПРЕДИЗВИЦИ Битола (Association of citizens for rare diseases LIFE WITH CHALLENGES Bitola ) | www.challenges.mk/ | ✉ zivotsopredizvici@gmail.com |
| 🇷🇺 Russia | Межрегиональная общественная организация (Interregional non-government organization “Assistance to invalids suffering from Gaucher disease and their families”) | www.gaucher.ru/ | ✉ info@gaucher.ru |
| 🇧🇬 Bulgaria | Национална Гоше Асоциация | gaucher-bg.org/ | ✉ r.tomova@yahoo.com |
| 🇰🇿 Kazakhstan | Общественное объединение “Дети инвалиды с болезнью Гоше” (Public Association “Children with disabilities with Gaucher Disease”) | ✉ Irasim0404@mail.ru | |
| 🇲🇳 Mongolia | ХОВОР ӨВЧНИЙ ЭСРЭГ ХАМТДАА (“Together in the Fight Against Rare Diseases”) | ✉ jdaria@gmail.com | |
| 🇹🇳 Tunisia | الجمعيّة التّونسيّة للأمراض اللّيزوزوميّة (Tunisian Association for Lysosomal Diseases) | %20www.atml.tn/ | ✉ association@atml.tn |
| 🇲🇦 Morocco | امل للتغلب على امراض الليزوزوم بالمغرب Espoir Vaincre les Maladies Lysosomales au Maroc (HOPE DEFEAT LYSOSOMAL STORAGE DISEASES ASSOCIATION IN MOROCCO) | ✉ benyounes.dhichi@gmail.com | |
| 🇯🇴 Jordan | جمعية العناية بمرضى غوشيه الخيرية الأردنية (Jordanian Gaucher Association) | ✉ jordaniangaucher@yahoo.com | |
| 🇨🇳 China | 北京正涛戈谢氏罕见病关爱中心 (Beijing Zhengtao Gaucher Disease Care Center) | ✉ yifang.deng@gaucherchina.org |
The IGA supports Gaucher communities around the world. If there is no patient organisation listed for your country, please contact us and we will do our best to help.
Email: admin@gaucheralliance.org
Registered Charity Number: 1192011
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