Working together for the Gaucher community
The International Gaucher Alliance works with organisations around the world to bring the patient voice into research, education, care and initiatives that address the needs of people affected by Gaucher disease.
If your organisation shares our commitment to improving the lives of people and families affected by Gaucher disease, we would welcome the opportunity to talk.
Bring the experiences, priorities and unmet needs of people affected by Gaucher disease into relevant projects and initiatives.
Connect with an international community of patient organisations, healthcare professionals, researchers and advocates.
Work together on initiatives that can contribute to better research, education, care and access for the Gaucher community.
Work with a patient-led organisation committed to transparent and responsible collaboration.
The IGA’s Strategic Plan identifies providing patient input into medicines development and clinical research, engaging with pharmaceutical companies and working with other stakeholders as important areas of activity.
Bring the experiences and priorities of people affected by Gaucher disease into relevant projects and initiatives.
Explore appropriate opportunities to include the patient voice in research and the development of potential new treatments.
Support initiatives that strengthen understanding of Gaucher disease among healthcare professionals and the wider community.
Collaborate on initiatives addressing challenges in diagnosis, treatment access and care.
The IGA’s work includes collaboration with industry, researchers, clinicians and patient organisations, as well as initiatives addressing education and access to care.
We work with research and scientific organisations, patient organisations, pharmaceutical and biotechnology companies, and other organisations that share our commitment to the Gaucher community.
The IGA is committed to transparent and responsible collaboration.
Our Code of Practice sets out the principles that guide our relationships with the pharmaceutical industry, including mutual respect, clear objectives and transparency around financial and non-financial support. Partnerships should contribute to improving the health and quality of life of people affected by Gaucher disease.
The IGA is grateful to the organisations that provide financial support for our work with the global Gaucher community.
The IGA’s Code of Practice requires it to publicly acknowledge pharmaceutical companies providing financial or significant indirect/non-financial support and to update this information yearly.
Whether you are a research organisation, patient organisation, pharmaceutical or biotechnology company, or another organisation interested in supporting the Gaucher community, we would be pleased to hear from you.
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