Connecting with other people and families affected by Gaucher disease can provide understanding, encouragement and a sense of community. Online groups offer a space to share experiences, ask questions and connect with people who understand life with Gaucher disease.
You can connect with other members of the Gaucher community through the following Facebook groups:
Please note: These groups are independently managed online communities. Information shared by members reflects personal experiences and should not replace advice from your healthcare team. Always speak to your healthcare team for medical advice specific to your situation.
There are many ways to build a support network, including connecting with other people
living with Gaucher disease, your family and friends, your healthcare team and your
local Gaucher community.
Looking for a patient organisation in your country?
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